COVID - 19 Support and Resources
RNE recognizes that this is an especially stressful time for many patients and families in the rare disease community who already live with medical problems and uncertainty in their daily lives. We hope everyone is taking the appropriate precautions to protect their health and the health of others.
RNE is keeping up-to-date and abiding by the CDC's recommendations, including moving our organization's efforts online until further notice in order to help flatten the curve in the Coronavirus outbreak. We encourage everyone to practice social distancing as much as possible.
In addition to information directly from the CDC, state-specific rules and recommendations are changing rapidly.
Our community is filled with generous members, organizations, and businesses that are offering free supports, activities and services to help the public during this difficult time and RNE would like to share them with you.
Take the time to visit your state's website to get the most updated and accurate information:
Connecticut
Maine
Massachusetts
New Hampshire
Rhode Island
Vermont
COVID-19 Supports
Great resources also available through the following organizations:
Global Genes: https://globalgenes.org/coronavirus-covid-19-resources/
For Primary Care Providers and Medical Staff
Information for Clinicians on Therapeutic Options for COVID-19 Patients - https://www.cdc.gov/coronavirus/2019-ncov/hcp/therapeutic-options.html
Telehealth Services Checklist: https://www.telehealthresourcecenter.org/wp-content/uploads/2019/07/checklist190508-gpTRAC.pdf
Supports for Physical and Mental Health
COVID-19 Resource Relief: https://www.laughingatmynightmare.com/covid
Connect with the 211 line to get help during this pandemic: http://www.211.org/services/covid19
Free meals for kids (Boston, MA):
Rhode Island Department of Health Free Food Sites for Children - https://health.ri.gov/diseases/ncov2019/about/foodsites/
Veteran Services (Boston, MA):
Boston Resiliency Fund: https://www.boston.gov/departments/treasury/boston-resiliency-fund
Mental Health America: https://mhanational.org/covid19
Web-Based Support Groups: https://www.thecenterforchronicillness.org/programs-and-services
Peer-Support Counseling: https://www.happythemovement.com/
Mediation with Jay Shetty live every day: https://www.facebook.com/JayShettyIW/live_videos/
Genetics Clinics in New England: https://clinics.acmg.net/
Telehealth Information: https://nccrcg.org/wp-content/uploads/Telewhat-Infographic.pdf
Free Workouts
Golds Gym is offering free access to its app, Goldsamp, until the end of May, where more than 600 audio and video workouts along with DJ mixes.
Planet Fitness is offering "Home Work-Ins" streamed live at 7 p.m. ET daily on its Facebook page: www.facebook.com/planetfitness
Yoga sites/apps offering free classes:
Virtually visit a museum, national park, opera, etc
Explore hundreds of museums virtually: https://artsandculture.google.com/
“Field trips” for kids - https://www.amrevmuseum.org/education-museum/students-and-teachers/virtual-field-trip
Free Virtual National Park Tours:
- Kenai Fjords Glacier Tour, Alaska - https://artsandculture.withgoogle.com/en-us/national-parks-service/kenai-fjords/exit-glacier-tour
- Carlsbad Caverns, New Mexico - https://artsandculture.withgoogle.com/en-us/national-parks-service/carlsbad-caverns/natural-entrance-tour
Free Live Opera Audio Stream: https://www.metopera.org/season/radio/free-live-audio-streams/
Free Live Concert Streams: https://www.npr.org/2020/03/17/816504058/a-list-of-live-virtual-concerts-to-watch-during-the-coronavirus-shutdown
Virtual Disney World Rides - https://www.wmtw.com/article/virtual-disney-world-rides/31788233#
Free Educational Supports
Scholastic Learn At Home allows open access to daily learning journeys divided into four grade spans—Pre-K–K, Grades 1–2, Grades 3–5, and Grades 6–9+, covering ELA, STEM, Science, Social Studies, and Social-Emotional Learning. To learn more and to access Scholastic Learn At Home, visit: http://www.scholastic.com/learnathome
The editors of Scholastic Classroom Magazines have launched a collection of kid-friendly resources for learning about coronavirus: https://classroommagazines.scholastic.com/support/coronavirus.html
Amazon offering some free Audiobooks on Audible: https://www.audible.com/ep/FreeListens
Free Educational Courses: www.Coursera.org
Listen to Betty White read “Harry the Dirty Dog” https://www.southernthing.com/listen-to-betty-white-read-harry-the-dirty-dog-2645536487.html
