Rare New England Videos
"Complex Care Challenges" presented by Amel Karaa, MD and Mark Korson, MD on April 30, 2016
Please click on the pictures to watch each video!
RNE President Julie Gortze, RN being interviewed by DoubleACS News about Rare Disease Complexities.
Mark Korson, MD speaking about the need for coordinated care clinics for rare disease patients at a fundraiser held at Muse Paintbar to raise funds for the MGH Complex Disease Diagnostic and Care Clinic, Nov 2015.
Video made by patients to say "thank you" to Dr. Korson as he left clinical practice in 2014 to begin teaching physicians about metabolic diseases.
RNE president Julie Gortze talks about rare diseases on Mansfield Cable TV show, The Learning Curve.
Click on pic to listen.
RNE Founder, Julie Gortze and volunteer, Melissa Hoyt (with Harkin) are interviewed on The Learning Curve about the organization and the rare disease community.
